Making my own path

I’ve gone doctor to doctor and have had tests after tests. Doctors keep saying one thing and doing another or say it’s up to me what I want to do.

Since none of the doctors I’ve had seemed to want to help me I started researching things I could possibly do to make myself feel healthy and strong. I started doing essential oils and vitamins and trying to do a healthy diet.

I started wearing pressure point bracelets for dizziness and nausea, I started taking progesence essential oil for my hormone imbalance, I also started drinking raspberry tea for the hormones. I’ve never felt better and they have no side effects like the medications doctors wanted to give me.

I have a oil necklace that I put rose oil in for anxiety, but you can put any essential oil in the necklace. I use lavender for the seizures and my hormones were also a part of my seizure problems. The essential oil Valor helps with the Chiari malformation, it decompresses off my spine and it also releases the pressure and the pain that I’ve had. I’ve had to use Calm Sleeping essential oil so I could fall and stay asleep, yes I go to sleep and wake up at decent times using this oil. I go to bed about 10pm and wake 6:30am to 7am and I never feel tired anymore during the day.

I’ve had to wean myself in to drinking more water and eating a healthy diet and making shakes to gain muscle. I’m not all the way back on a routine that I wanted to keep but day by day I’m getting so much closer.

I just want people to know that You don’t have to go to doctors making them more money especially if they are never listening to you. I hear your voice and I want to help anyone that has been in the same boat as I have getting someone to listen to you.

Miscarriage vs Uterus lining

So I have had surgery to get cartilage cut out infront of my hymen because I was having pain in my left side. Find out that I had bacteria in my fallopian tubes because when I had my period, it wasn’t all coming out like it should. So some would get stuck. This surgery was October 2018

I bring this up because that’s the feeling that came into mind when I was having the same feeling on that same left side. I didn’t have any pain in my uterus. I felt pains in my back, but I still didn’t think much of it because I’ve had pain like that before, so I thought it was just more bacteria. What is very strange is I have had this pain since I got pregnant with my daughter, so I’m wondering if I didn’t have twins and maybe the one baby got stuck in the fallopian tube. I ask that question because I haven’t had sex for eight to nine months and my seft side throught my fallopian tube has been hurting for 2 years. So since May 2020. March 15 I just had this ball of tissue with a tail looking thing attached to it. I had contraction like cramps before it came out. I have been overally moody for months, and now that it fell out my side hardly hurts, but it’s still like I feel a little something in there. I’m having tests ran to make sure that’s what is was, but I’m pretty sure because it felt like when I had my last miscarriage and my uterus don’t hurt just my left side where my fallopian tube is located. I also noticed that my head stopped hurting as servere. Boobs are still sensitive and I’m still bleeding. I so feel like I just gave birth. My back is achy, boobs overally sensitive, tubes hurt a little. It’s very strange to think I was either pregnant with twins or pregnant after I don’t know it’s hard to tell.

All I have are questions. How long has it been in my body? When did I get pregnant? Was I pregnant with two when I had my daughter? How to tell when your pregnant when it’s passed?

Different Sides of Doctor

I’ve had doctors that have helped me or have tried their best, but seems that I have had way more that haven’t even bothered to help. They just sent me on my way to make me someone else’s problem. They have also tried to give different diagnosis, or they add to that diagnosis. When one thing, can and is causing all these problems I’ve been having. One gave me a referral to Mayo clinic and then dropped me because they were showing that they didn’t know what was wrong with me, but for a small town girl that has nothing, there was no way I could find $5,000 lying around somewhere. The ones that were trying to get me fixed would move right before they sent me for the right tests or before they could find anyone to do my surgery. I have nothing toward doctors, heck I wanted to be a Travel RN. I just hate when they take their degrees to their head and act arrogant and they don’t want to listen to a word I try to say. I want a doctor that truly cares for each and every one of their patients. Maybe even somehow thinks of you as their own family. Someone that checks every hormone that might be low or high, thyroid. I want a royal treatment if that’s what it takes. haha I just want to feel heard for once. I don’t want to have to waste all the money in the world for a medical team. I am just sick and tired of feeling worthless because I am on SSI and they don’t give me enough to live on my own, I still am able to provide, but for all the things I need to do and I want to save for in life. I don’t get enough. These doctors sometimes give me a list of things I can’t or shouldn’t do, but I wouldn’t be able to live with all the things they have listed. I don’t want to live in fear. I want to be able to live, I want to feel like I succeeded and finished the goals I have set in life. Doctors have either ruined my name or tried to make me disappear, some were successful. Some of my records are gone, luckily my mother has stood by my side all these years and copied papers and kept them all these years. I am determined to get help and I am getting justice for my pain, mentally and physically. I am as stubborn as they come. I’m not just some stupid kid that’s a hypochondriac like they think. I’ve had focal seizures growing up and then they turned into tonic clonic seizures, clonic seizures, tonic seizures, grand mal seizures, absent seizures, and catamenial seizures. But for some reason when I turned 17 or 18 they started changing their minds because they either couldn’t figure it out or they were scared of the outcome. They don’t want to have to deal with difficult cases like mine. I’m actually very curious of why they keep changing their minds, but they put on meds for the opposite of what they say. For example: saying that it’s all anxiety and putting me on seizure meds. I am slowly getting my life my way.

A Lifetime of Misery

When I was younger I had focal seizures and people thought I was just dozing off even to I couldn’t snap back into reality. Didn’t know I had focal seizures til I was 12. Told I probably had them since I was born or the age 4.

My biggest problem and fall were when I ran cross country all my life and I was running toward my goal to be first place for once, so I kept beating my time faster and faster. I finally got to the time I wanted to pass and I was practicing one day. It was freezing that day, I was going to run inside bc I had nothing but shorts and a t- shirt. It was so cold when I was running back, so the numbness of my legs I thought I was just cold. I started having vision loss and it’s like I kept getting a warning, but my stubborn self thought to myself that I was only a mile out. Then my legs completely collapsed underneath me next thing I remember there was a teacher that was passing me in her car and took me back to school. My mom was already at the school bc practice was already over so she was waiting on me. But I only remember barely people putting me in the car. That’s the last I remember if that day. That’s the day I started having trimmer seizures. Also the first time I started having period cycles.

I started having issues with being able to eat bc I was nauseous or food got stuck in my throat. I started having seizures so often I got brain scarring. I always felt weak, numb, or in pain before the weakness and numbness. Neck and head always feels like it’s in pain. I have irregular periods. My legs, arms, hands, fingers, lips turn purple. My pupils dilate. I’ve gone life without being able to do a lot of things in life, I want to take my life back. I want to make statements so doctors can’t treat people the way they have treated me in the past and now. I only had a couple hand few that were good. If you continue to read my blog, then I will write about why my life took such a turn. But it doesn’t define Manx it doesn’t define what’s wrong with me.

Manipulative neurologists

I’m tired of doctors not listening to me, tired of being sent from doc to doc. I’m tired of one doc saying it’s different than what I have. I have epilepsy and a chiari mal 1 and I have plenty of proof. Now one tries to say it’s my nerves. I don’t have a degree so does that make me stupid and clueless to them? It’s my body I should know how I feel, so why try to ask me a million different questions to trip me up? Why should I open up to docs of how I am feeling if they do t want to listen they just try to put crap in my head that I might have never thought of. I’m tired of them not fixing me bc they’re to arrogant to say they’re scared or they’re wrong. I need major help to get this fixed and I’m hoping someone will be able to help reading my blog or know a good doc?.